http://www.debra-international.org/
(Dystrophic Epidermolysis Bullosa Research Association) DebRA international (Selbsthilfeorganisation)
http://www.debra.org/
(Dystrophic Epidermolysis Bullosa Research Association) DebRA of America, Inc. (Selbsthilfeorganisation)
http://www.debra.org.uk/
(Dystrophic Epidermolysis Bullosa Research Association) DebRA of England (Selbsthilfeorganisation)
http://www.orpha.net/consor/cgi-bin/home.php?Lng=GB
ORPHANET: Die Europäische Datenbank seltener Krankheiten
http://www.ebinfoworld.com/
EB Parent/Patient Support Network
http://www.emedicine.com/DERM/topic124.htm
eMedicine - Epidermolysis Bullosa : Article by M Peter Marinkovich
http://www.internationalebforum.org
Internationales Forum für Epidermolysis Bullosa
http://www.orpha.net/consor/cgi-bin/home.php?Lng=GB
ORPHANET is a database dedicated to information on rare diseases and orphan drugs
http://www.ebphilly.org
Homepage einer EB-Interessengruppe in Philadelphia / USA
http://www.dermatlas.org
Info-Portal über Hautkrankheiten der John Hopkins-Universität in Baltimore / USA